Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregivers
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Abstract (arXiv)
Family caregivers of individuals with Alzheimer's Disease and Related Dementia (AD/ADRD) face significant emotional and logistical challenges that place them at heightened risk for stress, anxiety, and depression. Although recent advances in generative AI -- particularly large language models (LLMs) -- offer new opportunities to support mental health, little is known about how caregivers perceive and engage with such technologies. To address this gap, we developed Carey, a GPT-4o-based chatbot designed to provide informational and emotional support to AD/ADRD caregivers. Using Carey as a technology probe, we conducted semi-structured interviews with 16 family caregivers following scenario-driven interactions grounded in common caregiving stressors. Through inductive coding and reflexive thematic analysis, we surface a systemic understanding of caregiver needs and expectations across six themes: on-demand information access, safe space for disclosure, emotional support, crisis management, personalization, and data privacy. For each of these themes, we also identified the nuanced tensions in the caregivers' desires and concerns. We present a mapping of caregiver needs, AI chatbots' strengths, gaps, and design recommendations. Our findings offer theoretical and practical insights to inform the design of proactive, trustworthy, and caregiver-centered AI systems that better support the evolving mental health needs of AD/ADRD caregivers.
Key facts. Cited by 13 papers in the map (data through 14 Oct 2026). Builds on 23 of its 187 references that are in the map. First posted on arXiv 18 Jun 2025.
Builds on
23 of 187 references.
References · 23
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Citing papers per year: 2025: 2; 2026: 11.
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- 2026RubRIX: Rubric-Driven Risk Mitigation in Caregiver-AI Interactionscited by 10
- 2026PAIR-SAFE: A Paired-Agent Approach for Runtime Auditing and Refining AI-Mediated Mental Health Supportcited by 7
- 2026AI Psychosis: Does Conversational AI Amplify Delusion-Related Language?cited by 5
- 2026Inform, Coach, Relate, Listen: Auditing LLM Caregiving Support Rolescited by 2
- 2026LLUMI: Improving LLM Writing Assistance for Mental Health Support with Online Community Feedbackcited by 2
- 2025Designing Beyond Language: Sociotechnical Barriers in AI Health Technologies for Limited English Proficiencycited by 1
- 2026A Checklist for Trustworthy, Safe, and User-Friendly Mental Health Chatbotscited by 1
- 2026A Taxonomy of Mental Health and Technology Needs for Alzheimer's and Dementia Caregiverscited by 1
- 2025Telling Speculative Stories to Help Humans Imagine the Harms of Healthcare AIcited by 0
- 2026AI Content Moderation in Therapy Conversationscited by 0
- 2026All four leading LLMs talk more than they listen to personality-verified synthetic help-seekerscited by 0
- 2026PeerPen: AI-Assisted Writing for Online Mental Health Peer Supportcited by 0
1 more
- 2026CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem15 Sep 2026
- 2026PeerPen: AI-Assisted Writing for Online Mental Health Peer Support14 Sep 2026
- 2026All four leading LLMs talk more than they listen to personality-verified synthetic help-seekers23 Aug 2026
- 2026A Taxonomy of Mental Health and Technology Needs for Alzheimer's and Dementia Caregivers17 Jun 2026
- 2026LLUMI: Improving LLM Writing Assistance for Mental Health Support with Online Community Feedback28 May 2026
- 2026Inform, Coach, Relate, Listen: Auditing LLM Caregiving Support Roles28 May 2026
- 2026AI Content Moderation in Therapy Conversations25 May 2026
- 2026AI Psychosis: Does Conversational AI Amplify Delusion-Related Language?20 Mar 2026
- 2026A Checklist for Trustworthy, Safe, and User-Friendly Mental Health Chatbots21 Jan 2026
- 2026RubRIX: Rubric-Driven Risk Mitigation in Caregiver-AI Interactions19 Jan 2026
- 2026PAIR-SAFE: A Paired-Agent Approach for Runtime Auditing and Refining AI-Mediated Mental Health Support19 Jan 2026
- 2025Designing Beyond Language: Sociotechnical Barriers in AI Health Technologies for Limited English Proficiency10 Nov 2025
1 more
- 2026RubRIX: Rubric-Driven Risk Mitigation in Caregiver-AI Interactionscited by 10
- 2026AI Psychosis: Does Conversational AI Amplify Delusion-Related Language?cited by 5
- 2026Inform, Coach, Relate, Listen: Auditing LLM Caregiving Support Rolescited by 2
- 2025Designing Beyond Language: Sociotechnical Barriers in AI Health Technologies for Limited English Proficiencycited by 1
- 2026A Checklist for Trustworthy, Safe, and User-Friendly Mental Health Chatbotscited by 1
- 2026A Taxonomy of Mental Health and Technology Needs for Alzheimer's and Dementia Caregiverscited by 1
- 2025Telling Speculative Stories to Help Humans Imagine the Harms of Healthcare AIcited by 0
- 2026AI Content Moderation in Therapy Conversationscited by 0
- 2026All four leading LLMs talk more than they listen to personality-verified synthetic help-seekerscited by 0
- 2026PeerPen: AI-Assisted Writing for Online Mental Health Peer Supportcited by 0
- 2026CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystemcited by 0
- 2026CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem15 Sep 2026
- 2026PeerPen: AI-Assisted Writing for Online Mental Health Peer Support14 Sep 2026
- 2026All four leading LLMs talk more than they listen to personality-verified synthetic help-seekers23 Aug 2026
- 2026A Taxonomy of Mental Health and Technology Needs for Alzheimer's and Dementia Caregivers17 Jun 2026
- 2026Inform, Coach, Relate, Listen: Auditing LLM Caregiving Support Roles28 May 2026
- 2026AI Content Moderation in Therapy Conversations25 May 2026
- 2026AI Psychosis: Does Conversational AI Amplify Delusion-Related Language?20 Mar 2026
- 2026A Checklist for Trustworthy, Safe, and User-Friendly Mental Health Chatbots21 Jan 2026
- 2026RubRIX: Rubric-Driven Risk Mitigation in Caregiver-AI Interactions19 Jan 2026
- 2025Designing Beyond Language: Sociotechnical Barriers in AI Health Technologies for Limited English Proficiency10 Nov 2025
- 2025Telling Speculative Stories to Help Humans Imagine the Harms of Healthcare AI16 Oct 2025