Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal Agitation
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Abstract (arXiv)
People with dementia (PwD) often present verbal agitation such as cursing, screaming, and persistently complaining. Verbal agitation can impose mental distress on informal caregivers (e.g., family, friends), which may cause severe mental illnesses, such as depression and anxiety disorders. To improve informal caregivers' mental health, we explore design opportunities by interviewing 11 informal caregivers suffering from verbal agitation of PwD. In particular, we first characterize how the predictability of verbal agitation impacts informal caregivers' mental health and how caregivers' coping strategies vary before, during, and after verbal agitation. Based on our findings, we propose design opportunities to improve the mental health of informal caregivers suffering from verbal agitation: distracting PwD (in-situ support; before), prompting just-in-time maneuvers (information support; during), and comfort and education (social & information support; after). We discuss our reflections on cultural disparities between participants. Our work envisions a broader design space for supporting informal caregivers' well-being and describes when and how that support could be provided.
Key facts. Cited by 4 papers in the map (data through 14 Oct 2026). First posted on arXiv 17 Nov 2023.
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Citing papers per year: 2025: 3; 2026: 1.
4 papers.
- 2025Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregiverscited by 13
- 2025Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer's and Dementia Caregiverscited by 7
- 2025Who Owns The Robot?: Four Ethical and Socio-technical Questions about Wellbeing Robots in the Real World through Community Engagementcited by 0
- 2026CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystemcited by 0
- 2026CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem15 Sep 2026
- 2025Who Owns The Robot?: Four Ethical and Socio-technical Questions about Wellbeing Robots in the Real World through Community Engagement1 Sep 2025
- 2025Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregivers18 Jun 2025
- 2025Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer's and Dementia Caregivers17 Jun 2025