mlsanityData to 14 Oct 2026

Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer's and Dementia Caregivers

arXiv 2506.14196 ↗First posted 17 Jun 2025cs.HC cs.AIcited by 7

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Abstract (arXiv)

Alzheimer's Disease and Related Dementias (AD/ADRD) are progressive neurodegenerative conditions that impair memory, thought processes, and functioning. Family caregivers of individuals with AD/ADRD face significant mental health challenges due to long-term caregiving responsibilities. Yet, current support systems often overlook the evolving nature of their mental wellbeing needs. Our study examines caregivers' mental wellbeing concerns, focusing on the practices they adopt to manage the burden of caregiving and the technologies they use for support. Through semi-structured interviews with 25 family caregivers of individuals with AD/ADRD, we identified the key causes and effects of mental health challenges, and developed a temporal mapping of how caregivers' mental wellbeing evolves across three distinct stages of the caregiving journey. Additionally, our participants shared insights into improvements for existing mental health technologies, emphasizing the need for accessible, scalable, and personalized solutions that adapt to caregivers' changing needs over time. These findings offer a foundation for designing dynamic, stage-sensitive interventions that holistically support caregivers' mental wellbeing, benefiting both caregivers and care recipients.

Key facts. Cited by 7 papers in the map (data through 14 Oct 2026). Builds on 10 of its 168 references that are in the map. First posted on arXiv 17 Jun 2025.

Builds on

10 of 168 references.

References · 10

  1. 2020Artificial Intelligence, Values and Alignmentcited by 448
  2. 2023Facilitating Self-Guided Mental Health Interventions Through Human-Language Model Interaction: A Case Study of Cognitive Restructuringcited by 53
  3. 2023Charting the Sociotechnical Gap in Explainable AI: A Framework to Address the Gap in XAIcited by 33
  4. 2024MindScape Study: Integrating LLM and Behavioral Sensing for Personalized AI-Driven Journaling Experiencescited by 24
  5. 2023Sensing Wellbeing in the Workplace, Why and For Whom? Envisioning Impacts with Organizational Stakeholderscited by 13
  6. 2025AI Chatbots for Mental Health: Values and Harms from Lived Experiences of Depressioncited by 13
  7. 2024AI on My Shoulder: Supporting Emotional Labor in Front-Office Roles with an LLM-based Empathetic Coworkercited by 11
  8. 2020Patterns of Patient and Caregiver Mutual Support Connections in an Online Health Communitycited by 4
  9. 2023Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal Agitationcited by 4
  10. 2019Caring for Alzheimer's Disease Caregivers: A Qualitative Study Investigating Opportunities for Exergame Innovationcited by 2

Built on by

Cited by year (2026 to 14 Oct)

Citing papers per year: 2025: 2; 2026: 5.

7 papers.

  1. 2025Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregiverscited by 13
  2. 2026RubRIX: Rubric-Driven Risk Mitigation in Caregiver-AI Interactionscited by 10
  3. 2026Inform, Coach, Relate, Listen: Auditing LLM Caregiving Support Rolescited by 2
  4. 2026A Taxonomy of Mental Health and Technology Needs for Alzheimer's and Dementia Caregiverscited by 1
  5. 2025InvisibleBench: A Deployment Gate for Caregiving Relationship AIcited by 0
  6. 2026When AI Says "I have been in similar situations": Synthetic Lived Experience in Peer-Like Caregiver Supportcited by 0
  7. 2026CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystemcited by 0