From Patient Burdens to User Agency: Designing for Real-Time Protection Support in Online Health Consultations
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Abstract (arXiv)
Online medical consultation platforms, while convenient, are undermined by significant privacy risks that erode user trust. We first conducted in-depth semi-structured interviews with 12 users to understand their perceptions of security and privacy landscapes on online medical consultation platforms, as well as their practices, challenges and expectation. Our analysis reveals a critical disconnect between users' desires for anonymity and control, and platform realities that offload the responsibility of ``privacy labor''. To bridge this gap, we present SafeShare, an interaction technique that leverages localized LLM to redact consultations in real-time. SafeShare balances utility and privacy through selectively anonymize private information. A technical evaluation of SafeShare's core PII detection module on 3 dataset demonstrates high efficacy, achieving 89.64% accuracy with Qwen3-4B on IMCS21 dataset.
Key facts. Cited by 1 paper in the map (data through 14 Oct 2026). First posted on arXiv 1 Aug 2025.
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